Monday, March 18, 2013

Cardiac Catheterization


Today is over, and we ended up not having to sleep over at the hospital, so all of us are happy about that!


The good news gathered from today's procedure is that the blood pressure in her lungs is not too high to move forward with surgeries.  If she'd had Pulmonary Hypertension, that would have presented a lot more barriers that could keep us from getting to a good place for her to be able to handle surgery.  So I'm thanking God for that answered prayer.

The doctors still don't think that it will be possible to make her left ventricle usable.  So that means they'll probably want to move forward with their initial plan of doing a Bi-directional Glen and Fontan surgery(ies).  The diagnosis they're giving to her condition for now is Double Outlet Right Ventricle with Mitral Atresia, which from what I understand could also be called Hypo Plastic Left Heart Syndrome.

Ideally I would love to find a hospital that believes she's a candidate for a bi-ventricle repair, because staying single ventricle would not make for a long lifespan for her heart.  The doctors at Rady's don't think that could be done.  But I'm hoping for the best with second opinions, which I'll be moving forward to gather asap, as the doctors at Rady's would like to operate in the next couple weeks or months.

Keep the prayers coming, today included a large victory.

15 comments:

  1. Prayers from TJ were just sent Naya's way.

    ReplyDelete
  2. Praying sweet Sarah! Even in the midst of all that, she is beautiful and looks so peaceful!

    ReplyDelete
    Replies
    1. Thank you so much Annie. She really has such a great disposition :)

      Delete
  3. Praying for your beautiful girl and her special forever Mama.

    Karin

    ReplyDelete
  4. lots of prayers for Naya and for you!

    ReplyDelete
    Replies
    1. thank you, that's just what we want! :)

      Delete
  5. So thankful for the good news Sarah and pray that you will hear more good news and options as you meet with additional doctors!

    The Garlands

    ReplyDelete
  6. Prayer works. My love and prayers are with you. Maya looks so content. It is obvious she is Gods child.
    Learn to live above your circumstances. This requires focused time with Me, the one who overcame the world. Trouble and distress are woven into the very fabric of this perishing world. Only my life in you can empower you to face this endless flow of problems with good cheer. As you sit quietly in My Presence, I shine Peace into your troubled mind and heart. Little by little you are freed from the shackles and lifted above your circumstances. You gain my perspective on your life, enabling you to distinguish between what is important and what is not. Rest in my presence receiving joy that no one can take away from you.
    John 16:33
    John 16:22

    ReplyDelete
    Replies
    1. Thanks Lori!
      Those verses are really encouraging to me, and thanks for the reminder to keep close to Him for peace and guidance. It's easy to get distracted.

      Delete
  7. lots and lots of prayers coming your way!

    ReplyDelete
  8. GOD is great and will do miracles for your little girl! !!

    ReplyDelete