Monday, March 11, 2013

Naya's Heart

photo by Stacy DeVries Bostrom

Naya and I have been home a little over a month now. It's been a heck of a month.

I'm thankful for so many things.  My mother, father and sister for giving of a LOT of their time to be with Naya and I, helping me as I learn how to be a mother.  My friends and family for their encouragement and honesty regarding how unnerving and difficult it really is to make that transition from a life about caring for ME to a life about caring for US.  My close friends that are making that effort to meet me where I'm at and even travel to be able to spend time with me/now us.  My employer for being so supportive and flexible for family and bonding time.  My puppy Lailu, for seeming to understand that I want to give her more attention but still need a little time to figure out how to balance everything.  Naya, for her love, patience, great temperament and amazing ability to adapt.  And to God for pulling me up out of each low point I've encountered. 

Last week had some hard news.  When I first had Naya's medical file from China reviewed last year, it appeared that she would need some serious heart surgeries, but that her heart was repairable and she should be pretty good to go after the issues were taken care of in surgery.
Last Monday at her cardiology appointment I learned that is not the case.  The details are still a little blurry to my scientifically-illiterate mind, but basically there is not a way to fix her heart long term.  This doctor has a plan for two surgeries that will get her heart to the place where it should be able to function well for 10-15 years. At that point he hopes there will be medical advances made that will create more options for her than a heart transplant.  Otherwise he said that people in her condition that get the surgeries he's suggesting would typically live into their 20's and 30's.

So of course that is scary and heartbreaking.  One moment you see this child and her unlimited future, the next you're wondering how many years you have left with her.  

That was a week ago today.  My heart and mind have been so encouraged by the words of friends and family that have a feeling of certainty that she is going to pull through this.  The immediate response of prayers has meant the most to me.  I do believe that they change things.  So I'm asking each of you who pray to please commit to praying for Naya's heart.

"And the prayer offered in faith will make the sick person well; the Lord will raise them up" James 5:15

I know God has a plan for Naya's future.  And I pray that includes health and long, long time here on the earth, and that her very life will be an example of God's faithfulness.  Her story this far has been a miracle to me, and I believe it will continue to be. 

We'll be overnight in the hospital next Monday for a cardiac catheterization.  That will determine whether she is in a position to move forward with the first surgery the doctor suggests.  At that point I will be looking to get second opinions from some of the top pediatric cardiologists in the country, and we will see if other options present themselves.

Here's a couple of my favorite pictures from this month, as Naya and I have grown to know and love each other more.





















14 comments:

  1. Definitely praying Sarah. That's heartbreaking. Praying for healing and for strength for both of you to face what's to come.

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    1. Thank you Rob, I know the prayers will make the difference!

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  2. I will add Naya to my daily prayers as I pray for the health of my child, I will raise yours up too.
    Warm hugs to you, Sarah.
    love, Cindy (and Ethan)

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    1. Thank you sweet woman & her husband! That means so much to know you're lifting her up along with your own baby. really overwhelming to know. Love you guys.

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  3. I'm storming the gates of heaven with earnest and heart-felt prayers for Naya's health and future! I whole-heartedly believe you're right when you say her story has already been a miracle, and WILL continue to be one! God has it in His hands, and know that prayers are going up... and that I'm here for you, too as you navigate this and go through this.... Love you! ~ Michelle Z.

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    1. Amen, thank you Michelle! It's amazing knowing how many people have joined me to pray for her right now. I truly believe the gates are being stormed like you said, And it will make a difference. Need to see ya soon! :)

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  4. I have a small, soft heart next to me on the table. Every time I glance at the heart, which is several times a day, I will pray for a miracle for Naya's heart. I will also pray for your heart.
    Blessings,
    Sally Hudson
    Jer.29:11

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    1. Sally I really appreciate what you said and are doing! That is such a blessing that you've so intentionally set out to pray for my girl and bring God's will into her life. Thank you many times, that means so much to me.

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  5. I wrote Naya's name and your name on the heart. I am a friend of Kelly Carlson who just brought her daughter, also named Naiya, home from China in January. I was on a trip to China with her in 2005.

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    1. Oh awesome- I hope so much that I get to meet Kelly at some point and our Naiya/Naya's can be reunited. Thank you for that heart on your desk for Naya's heart!!

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  6. Sarah, Naya is just precious. I am part of the FB Heart group and I am so glad you are there to connect with other moms. I will keep her in my prayers.

    Happy Easter,
    Lisa Murphy
    www.everythingmadi.blogspot.com

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    1. Thank you Lisa!
      That group is really proving to be invaluable, I'm learning so much so quickly from you ladies :)

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