Thursday, March 28, 2013

Some extra time to wait and see

I had a nice long talk with one of the cardiac surgeons at Rady's yesterday, about their current plans for Naya.  After more study of the cardiac catheterization results, they've decided the best plan is to wait 6 months and then re-evaluate.  It turns out the blood pressure in her lungs IS a little higher than they would like to operate.  The doctor's hope is that in  6 months or a year Naya will grow, tightening the band on her pulmonary artery, and creating a better environment in there to do the surgery they want to do.  Thanks to God her lungs do not appear to have damage.
I'm really glad to have more time to get second opinions from some other amazing hospitals, and to give Naya some more time to adjust to her new life before having to deal with open heart surgery.
I was also encouraged by the surgeons outlook on the surgery that Naya would be getting here at Rady's.  He thinks that the Fontan surgery could maintain for quite a bit longer than 10 or 15 years.  And as my cardiologist said, there are things in research now that could be ready in 15-20 years to help people that would be in her position at that point.  So that was good to hear.

So the next 6 months we should be able to mostly steer clear of the cardiology department, and then she'll have another cardiac cath to see how things are going. So pray for her to get bigger and her pulmonary blood pressure to go down.  And I'm adding on a perfectly functioning heart to my prayer list as well. :)  I'm also praying for wisdom for the doctors we get second opinions from, and for me to know the best way to proceed once I find out what those opinions are.


  1. I do believe her heart can be healed completely with love, prayer and the power of God. I am so grateful you get to be home loving her for the next 6 months.
    Love and prayers,